Tuesday, May 21, 2013

Phoebe's Wordier Follow-Up Post


I’ve been meaning to update everything that was going on when I posted last week, and then I go this morning to look at what I’d written, and I see Ryan’s amazing “The Fear” post and now all the little nuggets that were bouncing around in my head feel like the incoherent grunts of Frankenstein’s monster in comparison.

But I suppose I still feel inclined to give the more in-depth follow-up regardless, as I know people do want to know…

So, yeah.  Let me start with my dad, because I know at least one person left a comment wondering if there was any update on his condition.  My last post was on Wednesday.  By Thursday, I couldn’t take it anymore.  I was nervous about talking to him, but I had to call.  I was surprised that the hospital managed to put me straight through to his room.   And when I heard him on the other end of the line, I was just devastated.  He sounded awful and even worse he said several times that he FELT awful.  Hearing those words come from someone you love and not being able to do anything to help them is very difficult.  (I understand even more, now, how people felt while I was sick.)  He still did not seem to remember anything about the accident, but he DID know that someone told him he’d fallen off his bike and hit his head, but he didn’t know who they were or where he was.  The worst part by far, though, was at one point during our conversation, he drifted into completely unintelligible babble.  All I could pick out was something about “calling Detroit” because of something “about paradise”.  It was confusing and frightening for me to hear him saying strange things that make no sense, especially since we are all worried about the brain injury and what the long-term effects will be.  He did, however, repeatedly tell me he loves me and called me “baby” which is what he always calls me.  That was reassuring.  After we talked, I had a tearful breakdown (at work, no less – embarrassing) but managed to struggle through the rest of the day knowing that I had a 3 day weekend to look forward to.

Friday morning was the second mammogram.  It was difficult not to worry, despite having been told during Mammogram Round 1 that it is common to get called back in for more imaging.  I mean, it’s got to be difficult for anyone, but I’m not going to say that I don’t think it was a little harder for me knowing that I am now in a higher risk category for developing other types of cancer.  This time, there were TWO women tugging at my cans and trying to pose me in impossible positions to get the pictures they needed.  Keep in mind, at this point, I still only think they just need more images because of the density issue.  And then they reveal that they are trying to get the lymph nodes in my armpits in the pictures.  This is when I start to sweat.  And you can’t wear deodorant to a mammogram, so it’s also when I started to stink.  When they finally got what they needed (somehow wrecking a nerve in my shoulder that has made my entire arm hurt all week) it was back to the waiting room for me.  A few minutes later, I’m called into the dreadful “Consultation Room”.  Assuming this was where they’d be telling me I need a biopsy or something, I officially started to panic.  But, no.  She just told me the radiologist wanted an ultrasound done.  Which I had ALSO been told the previous week might happen.  Back to the waiting room where I ended up talking to a young woman who was also back for additional imaging and was super nervous as well.  When I told her I had had cervical cancer, another woman in the waiting room piped in that she, too, had had cervical cancer 5 years ago.  And there she was.  Fine.  Healthy.  This turned my mood around considerably.  And then the ultrasound technician came for me. 

She squidged the warm goop into my pits and began rolling away with the little ultrasound gizmo.  Said that the radiologist would be in after looking at the results and would likely also do another ultrasound herself.  After a few minutes of this, the technician said that she was going to go get the radiologist… whose name was – DR. PARADISE! 

You know how they say that people who are ill or dying (not that my dad is dying) or whatever are closer to the other realm or whatever you want to call it?  More aware?  Well at that moment, I was absolutely sure that my dad was there with me and that the incoherent babble from the day before about  “paradise” had absolutely EVERYTHING to do with him keeping me calm and letting me know I was going to be OK!

***NOW, PAY ATTENTION MY TATTOOED LADY FRIENDS***

When Dr. Paradise came in, she told me that everything was FINE.  She took one look at me and all my tattoos and explained that sometimes, the microscopic bits of metal that can be ingredients in certain tattoo inks can work their way into the bloodstream when you’re getting tattooed and then get picked up by the lymphatic system.  They eventually lodge themselves in your lymph nodes and sort of calcify in there.  So THAT is why they were taking all these extra pictures.  (Well, that and my lovely young cans are so DENSE.)  So yeah.  All my inky girlfriends.  Keep this in mind if YOU get called back when you go get your first mammogram!  It may just save you some anxiety!

After this good news, I proceeded to have a great weekend with mum and knitting dad.  We went to the aquarium (It didn’t suck, but wasn’t worth the price of admission. I give it a C+.) on Friday, the zoo on Saturday (which I always love, because I am 5 years old and love zoos.  And while a little more crowded than I’d like, gets a A-, if only because I got to see my crazy parents ride a camel!!!), and Stan Hywet Hall, plus a visit to some life-long family friends in Akron.  (Everything about Sunday gets an A+.  Stan Hywet Hall’s gardens are to DIE for!!!)

Oh.  And I did talk to my Dad one more time over the weekend.  He sounded much more with it, had terrible things to say about someone we mutually hate (which was hilarious), and seemed to have his appetite back, which was good!  While his voice still sounded strained and strange, he was definitely my same old dad in there, and that was VERY reassuring.  I also got to talk to my Aunt Pat, who was there visiting him when I called, and she was able to tell me that there were no significant medical updates - not that the doctor has been any help relaying information… it’s ALL ABOUT THE NURSES!  She said, and I quote, “We know who keeps the hospital running.”  So true.  (Can I pause here to say THANK YOU to all my amazing friends and family who are nurses or are in school to become nurses?!  You guys are all THE BEST people in the world.  I am proud to know each and every one of you!!!)

I think that is a good place to end my little follow-up (which took my entire lunch break to type – not so little, as it turned out…).  Thanks to everyone who continues to follow along.  The need for support through the cancer journey doesn’t ever end.  It’s good to know so many people are still with us. 

Love to you all,
Phoebe

Monday, May 20, 2013

THE FEAR

Just FYI for anyone following: the follow-up mammogram was all clear, she was told by the radiologist that older tattoo ink can sometimes show up as a spot in a lymph node, that is what they were seeing...

No more specific news about Phoebe's dad, it is apparently a "wait and see" sort of situation... she has talked to him a couple times and he is improving, and is apparently ravenously hungry. These are very good things.
______________

Hunter S. Thompson often wrote about "the fear". Like "THE" fear. Some of it, in his case clearly, was drug-induced; but this is something we all have. Not a specific fear... like "oh man, am I afraid of skydiving and turtles and circus peanuts", but an overall fear. A non-specific panic over the state and pace of life itself. THE fear. The fear is personified in all sorts of evil characters, from children's stories to religious texts. Tolkien of course makes it into an object. A ring. THE ring... and it is no mistake that this one ring is the center of his story. Negativity and dread, evil, darkness, jealousy .. hate even... these things are born of the fear. 

We all have it. People scoff when they hear a serial murderer or rapist or other variously horrible person say "I'm not that different than anyone else"... people scoff like they don't have the fear. They have it. We all have it, and sometimes we lose the fight to it. We all have days when the fear wins. We have events in our lives that force us to wrestle the fear at a statistical disadvantage. The fear changes shape and size of its own accord, but sometimes we feed it with our own hands and sometimes we inadvertently hand it an axe to swing. 

We can fool ourselves into pretending the fear isn't there with a wide variety of social constructs; some of these are positive, most of them are used for nefarious purposes by a handful of black-hearts willing to throw innocent people under the bus for money and power. You can choose to ignore this, lament it, or accept it and move on.

The point is, this fight is each of ours to face alone. We can gather tools and firewood, build a fort out of whatever beliefs we have, fashion whatever weapons out of logic and reason we think might work, talk about ninja moves with friends and family... but when the fear comes it's one-on-one. Just you and it. You win or you lose, and every day you live the results are posted for everyone to see. 

Fight on, people. Accept the challenge, face it, knock it down. Kick its ass before breakfast and put your feet on its back while you enjoy your coffee. This is how good days start. 

Have a good day!

Ryan

Wednesday, May 15, 2013

Keep going.


Is it me, or has this been one of those weeks, again, where everything seems to be going wrong for everyone I know?  Starting at home.

A week ago, something really amazing that Ryan had been working really hard toward fell completely apart.  It was devastating and, honestly, is STILL devastating – it’s just that so much other CRAP has happened since then that I feel like it fell apart a year ago, not 6 days ago.  A few days after that, our house refinance ALSO fell through. 

And then that same day, my aunt called from Florida to tell me that my father (Tattoo Dad) was back in the hospital.  For me, this has been the most difficult of the bad news.  The details all seem very hazy still.  The bits of the conversations I’ve had with my aunt that stick out in my head are “found in a ditch” “on his bike” “collapsed” “doesn’t remember anything” “brain bleed” “transferred to neuro hospital” “too out of it to give HIPPA release consent” “CICU”…  I’m fairly certain that it is not as doom & gloom as it sounds, but not being able to talk to him has been indescribably hard and scary.  And I have to admit that I am also afraid TO talk to him.  The fact that he has been described as being so out of it scares me.  It is, as a very wise friend of mine said to me yesterday, the most unstable feeling when your parent is not well and not their self.  So true.  So so true…

My most recent conversation with my aunt did also include the doctors’ belief that there will not be any long term damage from this fall, but it’s still frightening waiting… 

And while we’re talking about waiting – I had my first mammogram last Friday.  Monday morning thyey called to tell me I needed to come back in for more imaging.  The tech on Friday warned me that this is not uncommon on a first mammogram because they have nothing to compare it to.  No baseline.  This IS the baseline.  She said not to freak out if they call me back in.  I’ve been trying not to, but the fear is there.  I return this Friday, so hopefully by NEXT Monday, I’ll have an answer.  My AWESOME Nurse Practitioner from y Oncologist’s office, Erin, called me this morning to make sure I understood WHY they called me back in.  I guess I didn’t.  She said there was “a density”.  Again, it may be nothing.  Erin says she’s “not worried yet”.  Yet.  That just creeps me out.  And Ryan DID point out that as of a year ago when I had my post-treatment PET scan, there was NO cancer in my body anywhere.  And it's more than likely still the case.  That calmed me down a LOT.  I love that guy.  So, yeah.  I'm trying to stay positive.

Positively Phoebe.  I mean, that’s what this blog is supposed to be about, right?  Staying positive.  Believing.  Having hope no matter what.  Seeing the beauty in every day of my life.  Being full of love and gratitude.  And NEVER GIVING UP on the dreams I have for my life, my marriage, my career, my family, my friends, my artwork, my health and my body. 

Staying that positive isn’t always easy.  Especially during weeks like this one.  Weeks where it seems the entire Universe is conspiring to slam you onto the couch and under a blanket where you will mindlessly watch bad shows on your friend’s pirated Hulu Plus account until it is suitably past 8pm enough to just give up and go to bed. 

Well, I’m done with that shit.  I moped.  I lamented.  I’m getting off my ass tonight and having fun.  Because as rough as things have been, you know what else happened this week?

MY MUM and (Knitting) DAD ARRIVED IN CLEVELAND!!!  And they’re staying for about a MONTH!  We’ve already had some wonderful times (despite all the other poop happening).  And tonight we are meeting for dinner.  And I can’t wait and I am going to enjoy every second of the rest of their visit!  No more frowns.  Only good times ahead!!!  Aside from dinner, we also have plans during their stay for checking out the new Cleveland Museum of Art, the Cleveland Botanical Garden, the Cleveland Metroparks Zoo, the Greater Cleveland Aquarium, and maybe even the Polka Hall of Fame!  I am stoked for all of it.  (I will doubtless be completely spamming your Instagram feeds with all manner of photographic evidence of all of these adventures, so if you’re not following me, itsphoebemarie, on there – go do it!)

It’s hard when things get shitty to remember all the things we have to be positive about, to be grateful for.  But we have to try.  We can be sad, angry, disappointed, scared… we can be all of those things, but then we have to keep going.  Winston Churchill had that shit right.  “If you’re going through hell, keep going.”  That quote goes through my head at least 10 times a day lately.

Keep going.


Keep going.  Keep going.  Keep going.  Keep going.  Keep going.  Keep going.  Keep going.  Keep going.  Keep going…

Xxo, Phoebe Marie

Monday, May 6, 2013

Dear Dudes. Don't be so Dumb. Love, Phoebe


So, I'm feeling completely destroyed right now.  And it makes absolutely no sense at all.  And I am so mad at myself because of it.

At lunch today, one of the shop guys says to me, right as I sit down, "So, when are you going to have some kids?"

I was stunned, and just sort of curtly responded, "I can't."  He clearly felt terrible.  Apologized.  Mumbled something about adoption always being an option.  Then *I* felt bad for making him uncomfortable and explained that I never really wanted kids anyhow.

But as ABSOLUTELY true as that statement was, is, and continues to be, it seems to somehow be completely separate from this pain in my gut that makes my eyes water and my heart catch in my throat.

I fucking HATE that that decision was made for me.  Despite the fact that I never wanted kids.  Never.  Not once in my life do I ever remember feeling differently - not even for a moment.  I have zero interest, and moreso, I have zero resources.

So why?  Why, when I KNOW that I have no interest whatsoever in being a parent, does this stupid, insensitive question ruin my whole day?  Why can I not stop crying or choking back tears at my desk?

Ryan says it's just that it reminds me of something difficult in kind fo a shitty way.  That there's no more psychology to it than that. He's probably right, but I just don't know.  It seems to really mess me up whenever it comes up.

Is it just because it's this constant, obvious, physical reminder that there is something wrong with me?  I know this guy didn't mean anything, but seriously... he hurt me.  And then *I* felt bad for reacting.  And the whole thing just infuriates me.

I don't fucking care if "there's always adoption."  I don't care about adoption.  I don't care about kids.  What I care about is getting the motherfucking choice to NOT have them, the choice that should have been mine to make, taken away from me.  Any you know what?  If I HAD ended up pregnant, I'd have chosen to go directly to the god-damned abortion clinic without passing go.  But it would have been MY CHOICE.  And that would have made it different.

At least, I think it would have.

The worst part of this is the timing.  I have been in such a great mood.  Things are going SO WELL right now.  I love my new job.  Ryan has some amazing super-secret plans brewing that are going to be fucking INCREDIBLE.  As husband and wife, we are in a better place together than we have ever been.  I'm about 1/10 of the way to being caught up financially (doesn't sound like much, but trust me - it's HUGE!).  The weather is gorgeous.  We have friends coming to dinner tonight.  My parents will be here for a LONG visit within the week.  Everything has been so lovely.  I guess maybe I needed to just be knocked down a peg or something?  Like, The Universe was looking at me and went, "Oh, hell no.  We need to take that one down a peg today.  Let's remind her of her cancer and the things it took from her.  That'll be good."

Fucking sucks.

But tonight's dinner with friends will make me feel better.  As will just driving home in the sunshine, walking into my CLEAN house, being greeted by my ridiculous dogs, and getting a hug from my beautiful, perfect husband.

I've still got it pretty good.  And if The Universe wants to fuck with me today, fine.  I've handled a lot worse...

PMA and xxo,
Phoebe